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I Had Cancer Guidelines

We're all here for similar reasons - we've been touched by cancer in some way. It’s up to all of us to show each other that no one is alone. Your IHadCancer profile is your own place to call home during this crazy thing called cancer, we just ask that you keep these simple guidelines in mind when participating.

1. Always Be Nice. This is a place for connections and conversations – we encourage you all to talk openly but please remain considerate in all of your engagement. Don’t post obscene, hateful or objectionable content. Abuse and disrespect will not be tolerated in the IHC community and is subject to deletion and user removal at our discretion.

2. Be a Good Friend. The IHC community is a family. Please remember to be a good friend to the connections you make on IHC. Ask questions that you wish someone would ask you; if you can’t find the right words to say, send a hug, it can speak louder than words. A simple gesture goes a long way.

3. Don't Spam. This includes sending unsolicited messages of any nature, posting links to unrelated content, promoting a survey, fundraiser or product where it shouldn’t be promoted. If you aren’t sure if something is appropriate to post, e-mail us and we’ll let you know.

4. Think Before You Post. Everything you post on IHadCancer is secure, but it is up to you to monitor how much or how little information you are sharing about yourself and your experience. Please don’t share personal or identifiable information like your mailing address or your full name and don’t share other member’s information.

5. If You See Something, Say Something. We work hard to make sure these guidelines are followed closely but if you see something that doesn’t’ feel right to you, please let us know. We review every report we receive and will take anything you say to heart. We promise.

6. Be Open. Welcome newcomers and help guide them through this journey based on your own experience. Whether you are a survivor, fighter, caregiver or supporter, you have valuable information that can very well help someone else who is just beginning the cancer journey. Be open to sharing experiences and give someone else the gift of your time.

Thanks for being a part of our community. It’s up to all of us to ensure that IHadCancer remains a place for us all to call home when dealing with the ups and downs of a cancer diagnosis.

iamafighter's picture
iamafighter Connect

Survivor: Waldenstrom's Macroglobulinemia

I was dxed with Waldenstroms 3 years ago and feel like my life has been "on hold" every since that unforgettable day. I am still having such a hard time dealing with all the "complications" I have endured. I have no "will to live" as I do not know if I will really have a future. The WM costs me my work, energy and has made me so very afraid. In addition to the fatigue, WM has "stolen" my vision and hearing and in addition, I suffer from chronic pain. I have no "quality of life" and find it difficult to get excited about what life I have. I can't find joy in even simple things and I don't want to make plans because I don't know if I have a future. I am on a lot of meds and I know they affect my reasoning ability. it is a difficult situation to find oneself in when one feels as though you have lost everything. Having your vision and hearing severely "compromised" to a point wherein you are unable to even renew your drivers license just adds to the depression. I am unable to take anti-depressants due to their effect on my vision and hearing. I don't feel the need to set goals, because I don't know what is literally "around the corner". It is really difficult to be upbeat when so much is wrong.

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